rivka: (panda pile)
83


My score seemed impressive to me until they presented me with a list of the 187 countries I "forgot," which in many cases (e.g., Navassa Island, French Southern and Antarctic Lands) I had never even heard of.
rivka: (for god's sake)
Not when accepting sympathy from horrified people who've just found out.

Not when explaining to Alex again that there isn't a baby.

Not even when sorting and packing up some baby clothes for the move.

But without warning, this morning, while waiting for the elevator to take me to the hospital blood lab for a quantitative HCG follow-up, I completely lost my composure and started to cry. Half an hour later, I'm still feeling incredibly fragile. No idea why.

I would feel less broken right now if my reactions were easier to understand. In a way, it would make more sense if I were crying all day or unable to get out of bed. Instead, 90% of the time I feel totally normal and functional. And then: not.

The other thing that set me off without warning was hearing my father-in-law's voice, when we called him to make sure they'd escaped the tornadoes that slammed through Memphis on Tuesday.

Until recently, I had never really thought about the fact that the reason Michael was adopted is that his mother had several miscarriages, ultimately ending in a hysterectomy. Michael's father has never said a word to me about it. But somehow the kindness in his voice when he says "Hi, honey" connects me to this pain of his, more than forty years old but still present.

Michael's father is aware of, and solicitous of, Michael's pain and grief in a way that no one else seems to be. (I love Michael dearly, but I am ashamed to say that my grief is pretty self-centered right now.) I'm so glad that there is someone who sees his primary job as taking care of Michael. And yet what an awful, awful connection for a father and son to share.
rivka: (Obama)
In recent days, I've pretty much made up my mind to support Barack Obama for President. I feel good about my choice. Except that now Will Shetterly's pro-Obama comments in this thread are seriously making me want to change my mind and vote for Clinton.

Does this say more about me, or about Will?
rivka: (for god's sake)
Just talked to my midwife's assistant. I was a little confused about my discharge instructions from the hospital, which said to follow up with my midwife in two weeks. Originally she had told me that I'd be following up with a perinatologist (an OB who specializes in high-risk pregnancies) to monitor my hormones, because if this is trophoblastic disease it will be vitally important to know whether my pregnancy-hormone level goes all the way down to zero and stays there. (If it doesn't, it means that tumor cells implanted somewhere else and are continuing to grow.)

At the hospital, apparently, someone told Michael that my hormone levels were lower than they'd expect to see with trophoblastic disease, and that they were leaning more towards thinking it was a "blighted ovum" - a fertilized egg so chromosomally damaged that it was able to produce a placenta (and therefore pregnancy hormones and symptoms) but not an actual embryo. But that's not something they can actually diagnose until the path report comes back - which won't be for two full weeks, because (among other things, apparently) they have to do a chromosomal analysis.

So it turns out that we're going to be following a middle path. I don't need to go straight to a perinatologist, but I also can't just coast until my two-week follow-up at the midwife's. Instead my midwife will be ordering weekly hormone-level tests until we figure out what the hell this was all about. That seems reasonable to me. It's somewhat of a relief that they're not just slapping me onto the full trophoblastic protocol, and yet I also really really want to know what my hormone levels are doing.


I am in a lot more pain today, although it's nothing 800mg of ibuprofen can't handle. I now admit that yesterday I was being a macho, irrational, self-denying idiot. So today I didn't just stay home in the morning - I stayed home, resisted the urge to do "just a little" packing or cleaning, and laid on the couch for two and a half hours watching West Wing reruns. And I asked Michael to arrange his schedule so that he could drive me to and from work.


Emotionally I am coming along. I am sad but not completely prostrate with grief. However, I notice that I am banking a lot on being able to get pregnant again almost immediately, and I suspect that if that doesn't, or can't, happen then I will probably fall apart in a big way. And that might well be a problem.

If this is trophoblastic, standard medical advice is that we not even try to get pregnant for a year. Which would realistically mean that we'd wind up with kids who are five years apart or more, which... feels like a family with a big hole in the middle of it, where another kid should've been. Honestly, even a four-year gap seems like too much to me, except that that ship has clearly already sailed.

It's also the case that I'm almost 35. Even if we can start trying again right away - if it's a blighted ovum, for example - there's no guarantee that it wouldn't take a year or more for me to get pregnant. And I'm pretty sure that I wouldn't handle that well.

I think I will be able to cope with a baby deferred. I don't think I'll be able to cope with maybe-not-another-baby. Or a family with a big aching hole in the middle, instead of kids close enough to play together.


I also notice that I am channeling a lot more emotionally energy than I normally would to planning and organizing things for Alex. This seems reasonably healthy as long as I keep things under control practically and financially. But boy, have I ever been doing a lot of shopping for the perfect big-girl bed with the perfect accessories. And the best presents for her birthday, two months away. It's nice to be able to divert my energy towards the kid I actually have. It's nice to have a kid to divert my energy to.
rivka: (panda pile)
I just came across a fascinating story about a Congregational (United Church of Christ) church in Connecticut which is beginning to go through the "Open and Affirming" process - a series of discussions, study, and exploration directed towards opening the church to be fully inclusive of GLBT people.

Just before Christmas, every member of the church received an anonymous letter offering a $50,000 donation to the church if the O&A process were abandoned.

From reading the link, it sounds as though the congregation as a whole has been ambivalent about becoming O&A. Apparently it's been a question that's been discussed and not accepted before, and some members are bringing forth Biblical objections.

That's why it's so awesome that, according to the senior minister:
The church leadership and staff were immediately inundated with calls, letters and emails. To my knowledge not a single message was received that said the church should consider accepting the proposal.


At the link, you can read the senior minister's full response - which includes a thoughtful analysis of Biblical arguments against homosexuality, as well as a general discussion of how the church should be guided on contentious issues. My favorite part is this:
I have written before about the church being a place where people can discuss issues of great importance to their communities and their own lives. I have been in churches where people are scared to talk about issues where there might be disagreement; to me, those are faith communities that are just going through the motions. When you read the book of Acts, you find that, from its very beginning, the church has been a tempestuous thing, involved in discussions about issues large and small. Part of discerning what the church is and where it is going is having the members share their insights with one another. It is how we educate and challenge one another. It is also where we discover how God is still speaking to each person. The idea of being paid to not talk about something is disturbing. It flies in the face of the whole idea of being a Congregational church where the true power and responsibility rests in the hands of the congregation.


I grew up in a Congregational church, and I remember how a poorly-run O&A process tore my congregation apart. (The process was renewed a few years later, and was fully successful then.) Ideally, of course, full inclusivity would be such a no-brainer that there would be no need for struggle or care in its implementation. But when that isn't where people are, I really respect them for being willing to put this much thoughtful work into the process.
rivka: (for god's sake)
Saturday morning, Michael brought Alex up to our bedroom and the two of them climbed in bed with me. She noticed my hospital bracelets right away.

"What's that?"

"That was a bracelet from the hospital. I got very sick yesterday and had to go to the hospital so doctors could take care of me. They put the bracelet on me so that everyone would know who I was."

"Did you ride in a fire truck?"

"You mean an ambulance? No. Papa drove me in the car."

"If you're sick you should ride in an ambulance," she informed me.

She asked some questions about whether different parts of my body hurt. "...What hurts, then?"

"My tummy hurts." I took a deep breath, realizing that this was the time to explain. "Do you remember that we said a baby was growing in a special place in my tummy? There is not going to be a baby. We thought a baby was growing there, but Mama was just sick. I hurt in the place where the baby was supposed to grow. Maybe someday a baby will grow there, but not for a long long time. So that's very sad."

Alex made a little sad noise.

"I know," I said. Michael and I put our arms around her. "We're all sad that there isn't going to be a baby."

"Mama, do you feel better?" she asked.

"I'm a little better, but I'm still sick. I need to rest and lie down a lot today, and I can't pick you up or have you climb on me. In a few days I'll be better."

We set up a signal: I would keep wearing my hospital bracelets to remind her to be gentle with me. When the bracelets came off, it would mean that I could pick her up again.

A couple of hours later, she looked up from playing. "There's not going to be a baby for a long long time?"

"That's right," I said. "Maybe someday, though."

I sent her and Michael off to church by themselves this morning. She turned around at the door and looked earnestly at me. "Mom, get lots and lots of rest."

"Okay, honey. I will."




I thought I would never ever post song lyrics in my journal, but I've had a Meg Barnhouse song on repeat play for the past three days, and it's helping more than I imagined a song possibly could. It's a conversation between her and Julian of Norwich.

lyrics below )
rivka: (for god's sake)
The short version: My bleeding got worse, and my midwife had me come to the hospital whether or not they had room for me. I had to wait a very long time. In the interim, the bleeding got downright dramatic. I had the D&C, and by a couple of hours later I felt surprisingly okay: tired, crampy, and weak, but okay. I waited even longer for the hospital to finish things up and then came home. Michael, Emily, and [livejournal.com profile] wcg are heroes.

The long version: warning: includes a description of what makes bleeding qualify as 'downright dramatic,' plus some other graphic content )

Home.

Feb. 2nd, 2008 03:19 am
rivka: (ouch)
I'm home. I'm reasonably well.

I know that tomorrow I will be grieving and sad again, but right now I am so profoundly relieved. It got really scary there for a while.

Thank you all, so much, for your support. It means more than you could possibly know.
rivka: (for god's sake)
Leaving for the hospital. In the words of my midwife Kathy, "This is no longer elective."

More ASAP.
rivka: (for god's sake)
Still home. Waiting for the midwife to call back.

disturbing material, as usual )
rivka: (for god's sake)
D&C is tentatively scheduled for 4pm today. I say "tentatively" because the L&D unit at the hospital is busy today, so they may not have time to see me. disturbing material below )

My friend Emily is going to pick Alex up at nursery school at 5pm and bring her to her house, where she can play with her friend Zoe and have dinner. Her neighbor will watch Zoe during pickup, so we don't need to worry about dropping off Alex's carseat. If we wind up being at the hospital longer than expected, Emily will bring Alex back to our house and put her to bed. We've arranged for a key for her.

Nursery school will explain to Alex at 4:45, but not before, that she's going home today with Miss Emily instead of with Papa or Mama. Emily will explain to Alex that Mama is sick and had to go to the hospital, but that Papa is taking care of me and I will be home soon.

Emily will bring something by tomorrow for us to have for dinner. God, she's a good friend. It's so nice to know that I can just rely on her to make things happen.

Our minister Phyllis is coming by in about half an hour to talk with me and Michael. One of my church friends asked if there was anything she could do, and I actually thought of something for once: she could call the church and let someone know that we need pastoral care, and why. I kept wanting it, but not being able to imagine picking up the phone and making the call and explaining things. So thank God for Megary. And Phyllis.

When the midwife's assistant called and told me not to eat anything more today because of the D&C, I asked her if that meant no water as well. Then I used the time it took for her to check with the midwife and call back to drink a big icy cold glass of water, which was good because when she called back she limited me to ice chips. I think that means I'm going to be fully sedated for the procedure, which, good. There's no way I want to be conscious to experience or remember this.

Am I leaving any kind of necessary preparation out? I've got the pacing-the-floor part covered. Anything else?
rivka: (for god's sake)
I had to walk down the baby aisle at Rite Aid to get to the pads I need for the bleeding.

I had been doing so well, this morning. Cuddling Alex, making her a special breakfast, pressing my cheek against her hair and reading her stories. I was able to play with her and even laugh. My real live girl. I thought, I'll survive this.

And then there I was in the Rite Aid parking lot, icy rain bucketing down on my bare head, sobbing so hard I couldn't fit my car key in the lock.

I don't think this can possibly be my life.





I'm sorry. This is just going to be an awful journal to read for a while. I honestly won't mind if you don't.
rivka: (for god's sake)
I can't believe that my midwife got through that whole conversation without using the word "cancer" or "tumor." Because if this is gestational trophoblastic disease? Then it's a tumor. Even in the benign form, 20% of patients wind up needing chemotherapy because some of it grows back. And there are also forms that are initially malignant.

The NCI website describes GTD as "highly curable," so we're not talking about tragic deathbed scenes here. But it looks like she wasn't kidding about the intensive monitoring, and for damn good reasons.

Disaster.

Jan. 31st, 2008 01:59 pm
rivka: (for god's sake)
There's not going to be a baby.

There was never a baby.

disturbing material below the cut )
rivka: (Rosie the riveter)
Thanks to everyone who contributed to the discussion about disability and sexuality, and how I could present those issues to my OWL class.

I went with [livejournal.com profile] echosupernova's suggestion and came up with several short readings to replace the long, creepy one. We'll have a different kid read each quote, and then we'll have some general discussion and the Values Voting to complete the disability half of the evening's entertainment.

The readings I found are below the cut, in case anyone's interested. I gleaned these from various sources online, editing them down from longer essays. I wouldn't normally devote this much time to readings in an OWL session, but I think it's important to have diverse examples.Read more... )

Things.

Jan. 28th, 2008 10:51 am
rivka: (forward momentum)
We've started the sorting/discarding/organizing process which will one day lead to packing. Yesterday Michael took a first load of stuff to Goodwill: five big bags of old clothes and toys, and a chair. We've also gotten rid of three 30-gallon bags' worth of trash. It's a good start... but it's also just a tiny dent in our three-story house full of stuff.

We're not precisely pack rats. We don't have emotional attachments to most of these things, or vague ideas that someday they'll turn out to be useful. It's more a problem of inertia. Things come into the house and get stowed away, and when they've outlived their usefulness we just never get around to throwing them out. We probably have more storage space than is really good for us.

I filled a 30-gallon trash bag just with things that were in my desk, on my desk, or stacked behind my desk in the little space between my chair and the wall. The black cardboard folder I used when I was planning our wedding, with rough drafts of the guest list, extra invitations, and sample menus from the restaurant where we held the reception. Cartoons one of my old housemates drew of my ex. The Lesbian Avengers handbook. Every single card we received when Alex was born. A highlighted guide to the competitive races in the 2006 election. A list of books I read in March of last year. Old Mac-formatted backup disks with my college senior thesis on them. Back issues of Mouth magazine. Printed-out drafts of academic papers. Posters I once presented at conferences. Manuals for electronics I no longer own. A 56k modem card which, if I recall correctly, doesn't even work, and which belonged to a laptop I got rid of in, um, 2002?

It's kind of exhiliarating to get this stuff cleared away. And it feels so good to imagine moving only needed, useful, appreciated things into our new house. The new house will have vast quantities of storage - there's a full basement - but we will not just move our junk.

Keeping the new house decluttered is going to be a different story, though. Anyone have good decluttering or clutter-prevention resources to recommend? Anything that's actually, you know, follow-able?
rivka: (her majesty)
Not posted to the OWL filter.

I know I have some very smart, very clued-in people with disabilities on my Friends List. I'm pleading with you to help me fix the one messed-up session in OWL, the grades 7-9 sex ed class I'm teaching. Feel free to point other friends here, if you think they may have helpful comments.

Here's the problem... )

Here's where I need your help:

1. I need readings. Anyone got anything they love? I knew I'd lent out my copy of With the Power of Each Breath years ago and never gotten it back, but I foolishly assumed that our library would have it. Nope.

2. I have three "Values Voting" statements. Please critique them, fix the wording, and suggest any better, or additional, ideas:

a) Mentally retarded people shouldn't have sexual contact, because they're not really able to give consent.
b) It's fine for disabled people to have children, even if the disability might be inherited.
c) Being in a relationship with someone who is seriously disabled would just be too hard. (Possible alternate wording: "It takes someone really special to be willing to have a relationship with a disabled person.")

I want to make this a good, engaging, educational experience for the kids. But I'm a little nervous about, um, how far inside I am on this issue. It makes it hard to know exactly what's going to be appropriate and helpful.

So... help?
rivka: (Baltimore)
Our landlord called tonight - the first time we've spoken to them since they gave us notice. Ostensibly the call was about the BGE guy who came out to check some faulty radiators on Monday. But then he segued.

"So, uh, I got a call from someone named Rosemary, asking for a tenant reference for you guys."

"Yeah," I said. (Rosemary is the agent for the owner of the house next door, the one we really, really want.) "I hope you told her we were acceptable tenants."

"Oh, I told her you were just great! ...Have you signed with her? Because my brother is thinking about buying our house, and he would use it as an investment property, so, um, he'd be renting it out. But we won't have an answer from him for about a week." And it would be a lot more convenient for him if he could get the house with renters pre-installed, plus then I wouldn't have to do the renovations I would need to do to sell the house to strangers, he didn't add.

I told him that, given that we've found a house we really like, we would now prefer to move. Then I went on to let him know how shocked we were to have our lease terminated so abruptly, and how we hadn't budgeted for a move so early in the spring, and what a difficult situation this was for us. I told him that we would appreciate it if they could cut us a break on the last month's rent.

"I guess we, uh, I guess we had a misunderstanding," he said, "because even though we'd originally asked you to stay an extra year, we told you last fall that we hoped to sell the house in the spring."

"Our lease would've been up May 31st," I said. "That's still the spring, so that's what we thought you meant."

"Oh." He told me he'd have to discuss it with his wife, and they'd be in touch.

Five minutes later, the phone rang again. It was his wife. Who had no idea that we were unhappy about receiving notice! Why didn't we call her right away? She feels awful! She doesn't want there to be any problems or hard feelings. ...When am I due? Would it be helpful to stay out the original rental term? "...And are you really, really sure you don't want to buy our house yourselves? Did you talk to your bank?"

I explained why we don't want to buy. I explained again that, having found a house we like, we think we'd better go ahead and move. But we don't really want to pay double rent for the month of March, given that we weren't expecting to have to budget for a move just then... could they help us out?

The final arrangement: we're going to move the bulk of our things as early in March as is practical for us, and they're not going to charge us anything for the couple of weeks it takes us to move and clean. And she swears that we'll be getting our full security deposit back. And she's very, very sorry for having caused us even a moment's distress.

Feeling somewhat better about the landlords now. But I'll still be happy to get into a different place. And it's really looking like the house next door will be ours - Rosemary said that all she was planning to do was check our landlord references, and if our current landlords gave us a good one we should be in the clear.
rivka: (family)
Michael and I are absolutely delighted to announce that I am twelve weeks pregnant! I'm due August 3rd.

Read more... )
rivka: (psych help)
I just quoted a science fiction author to a client, for what I think was probably the first time in my career. Lois McMaster Bujold: "The only thing you can't trade for your heart's desire is your heart."

I don't tend to use quotes or aphorisms much in general, but then again, it isn't often that a quote perfectly sums up a client's entire therapeutic journey of several years' duration. And comes to mind at precisely the moment when she can receive it as an apt phrasing of what she has already come to know in her heart, and not as a lesson or lecture.

She was really moved. I am really pleased. I like to think that Lois would be, too.

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